Useful information for carers or families of someone with a chronic health condition
See also our webpage Finance for advice on these subjects.
Australian Health Consumer click link
Covers issues including health financing, privacy, patient safety, quality use of medicines, clinical standards and general practice.
Carers Storybook click link
Hard copies 1800 050 009 quote product number FACSIA 0770.0801
Around 4,000 carers described their experience in submissions to Carer Payment (child) Review Taskforce. Read stories from 19 carers whose children have a severe disability, medical condition or terminal illness, from initial diagnosis to the complexities of life day-to-day.
Supportive Care for Kidney Disease click link
Published by Sydney South West Area Health Service - Eastern Zone Renal Unit
Info for Australian patients, carers and their families about supportive care. Subjects covered in this book include: Supportive Care of End Stage Kidney Disease, Kidney Disease Symptom Management and Palliative Care, Planning for your Future, Community Services.
Working Carers Support Gateway Project click link
Resources and support for low income and busy carers juggling caring and workplace demands. Of particular interest to isolated, regional and culturally diverse carer groups note portals Indigenous Australian Working Carers and Culturally and Linguistically Diverse (CALD) Working Carers. Refer to Service Directory and Fact Sheets for finance information and advice.
We encourage you to email Ali Hickerson - email@example.com - Editor of our monthly Kidney Community News, with suggestions for articles. We would all love to hear about your path with kidney disease!
AUSTRALIAN FAMILY AND CARER SUPPORT SERVICES
www.carersaustralia.com.au Call 02 6122 9900 or fax 02 6122 9999
firstname.lastname@example.org or check Carers Australia - State information
If you and your family need more help at home, the following services may be help when choosing supportive care. Your health care team or Social Worker can give further information.
- Home and Community Care Program (HACC) Australian, State & Territory Government Initiative
Domestic assistance, personal care, professional allied health care and nursing services to support older Australians, younger people with a disability and carers to be more independent.
- Australian Association for Families of Children with a Disability 1800 222 660
- Home Care Service - 1800 350 792 Long term assistance for patients, carers and families - assistance with cleaning, personal care, grocery shopping and carer respite
- Department of Veterans Affairs Home Care - 1300 550 450 Long term support for eligible veterans, war widows/widowers - help with cleaning, personal care, shopping, carer respite.
- Commonwealth Carer Respite Centre -1800 059 059 *free local - mobile rates apply.
Short term emergency support for carers - with cleaning, personal care, shopping and carer respite.
- Commonwealth Carer Resource Centre - 1800 242 636 Referrals to services or carer kits - emotional support and counseling programs.
- Commonwealth Carelink Services - 1800 052 222 or www.carelink.com.au
- Telephone Interpreter Service - 13 14 50 TTY 1800 552 152 for hearing/speech impaired
Medicare Australia - 132 011 to locate a Medicare office
Private Health and Chronic Disease
Australian Patient Assisted Travel Scheme (PATS) state information
Isolated Patient Travel and Accommodation Assistance Scheme (IPTAAS)
Patients traveling to the city for treatment may be eligible for financial assistance for travel and accommodation expenses. This scheme has a different name in each State and Territory: See KHA Finance webpage.
Patients should be advised they may need to claim in advance in some states. In some states, support is available for family members, and some states also have patient accommodation available through the cancer organisations or hospitals at reduced cost. List of available resources is available from each State and Territory cancer organisation or local hospital.
Australian Consumer Reference Weblinks
Australian CKD Renal Health Networks - Government
International Kidney Patient Associations and Charters
Australian State Consumer Advocacy weblinks
Regional and Rural Australia
or email a query to KHIS@kidney.org.au
Our Kidney Health Information Service (KHIS line)
Free call service for people with, or affected by, kidney and urinary disease
National Relay Service - www.relayservice.com.au - for those with hearing or speech impairment.
Use this service to connect to our KHIS line - quote 1800 4 54363 as '9' is silent for this purpose.
TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555 727 I www.iprelay.com.au/call/index.aspx
UPDATED 29 APRIL 2013