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Special books for Kidney Kids and other fun things! Share this page with your parents, family and friends.
Kidney Kidnections Cost: $25 including postage
More than just a story book, it is an account of experiences of children and parents struggling to come to terms with a diagnosis of kidney disease. Simone Eyles, a parent of a Kidney Kid, produced and developed this book presenting real stories of 18 Australian families with kids affected by kidney disease. She presents inspirational, personal and uplifting insights into their journeys, supported by beautiful photos and simple facts on kidney disease, how our kidneys work and a glossary of easy to understand terminology.
Order this 80 page colour book (proceeds support our fight against kidney disease) using our resource order form or call 1800 4 543 639 to order or email email@example.com
Moe's Sick Kidneys Cost $10 each (inc GST and postage)
Moe takes his friend Milko on an adventure to tell him what it’s like. Milko thinks Moe is very brave having sick kidneys, having his blood cleaned and taking care of himself. This book is a great story and activity book for kids who have sick kidneys and friends around them.
Collaborative project between Kidney Health Australia and University of South Australia - prepared by final year occupational therapy students, Veronica Edwards and Catherine Tonks
Where's your kidneys Mum? FREE to all postage & handling costs only
Call Wendy Faulder to buy a copy of this book on 02 6244 2046
or email firstname.lastname@example.org
A simple story for kids of parents with chronic kidney disease.
Starting dialysis is a devastating challenge for anyone and has an effect on all the family. Kids in particular find this very hard to understand. This charming book uses delightful drawings, to help tell this story to kids involved, which makes it easier to set out day to day practical problems a family may face, when a parent starts dialysis. This book explains why dialysis helps the kidneys do their important work in the body, so kids better understand basic issues related to dialysis and kidney failure. View animations: how our kidneys work * how dialysis works with your child - these are excellent education resources which can support this book's message.
Read excerpt from Where's your kidneys Mum? as an example of content.
Funds raised will be donated to
Canberra Renal Outpatients’ Services
Kids Companion on Kidneys Free KHA publication
Tells it 'how it is' to be a kid with CKD, on dialysis waiting for a transplant and how different and difficult life can be when you can only eat certain foods and drink limited fluid and have dialysis regularly to live. Support sheets can be printed when needed:
Family friends I Important contacts I Tablet timetable
Snap's Kakadu Club CD/DVD - First Steps
"Billy Kidney's Healthy Fun Show" CD/DVD
Part proceeds from sales go to Kidney Health Australia
Kids (3 to 13) learn about their kidneys and other fun stuff. Lindi's new album features tracks from her shows which focus on ‘wholesome’ but fun themes. Great website too at www.snapskakaduclub.com.au
Lindi's fun and entertaining characters teach good health, confidence, being aware of the world, social wisdom, stranger danger, how to handle bullies and reinforces positive life skills.
Ventriloquist Lindi Jane is our special Kid's Ambassador and donates her time to entertain our Kidney Kids at our Camps, Capers and other events.
Billy Kidney's Health Tips are wise:
* Keep fit -be active
* Drink plenty of water
* Eat lots of fruit and vegetables
* Avoid take-away food
* Dance run hop swim skip - as you like
* Play sport outside often with friends
* Be happy and healthy
Click on the YiouTube video to listen to 'Billy, Billy, Billy the Kidney...... on this album.
You'll love it - it is very catchy.
There's No Such Thing As A Silly Question Free publication
Practical guide and resource for Australian families, to assist parents of children with chronic illness, disability, mental illness, or a life-threatening illness, find their way around the often complex medical and community systems.
ONLINE OPPORTUNITIES FOR KIDNEY KIDS AND THEIR FAMILY
We have reviewed and collected many interesting and educational videos and animation for your information and education.
Kidney-Ed TV on YouTube
We have reviewed videos and animations which are educational and interesting for both adults and kids
This collection of clips has been reviewed by our medical and health team and are quality videos - amazing animations, health education videos, patient stories and various topics grouped into playlists. View Kidney and urinary system playlist first, then others which you may be interested in.
Kids Helpline 1800 551800 - 24 hrs every day www.kidshelp.com.au
Fun friendly website - place where you can get help and connect. What is Kids Helpline? Young people (5 to 25) can phone, email or chat online with a counsellor.
Kidney Kids are invited to join LIVEWIRE - moderated chatroom
Support place for kids, teens and families to connect, share experiences, creatively express themselves and know they are not alone. Livewire chat hosts are trained in adolescent health and are online 24 hours a day, seven days a week, to ensure that Livewire remains a supportive and fun place. Membership is free for any 10 to 21 year old living with serious illness or disability. Register www.livewire.org.au phone 1300 727 827 or email@example.com
Onsite KHA recommended web pages
Using the web and Kidney Glossary - valuable tools for your school and personal health research. Explore our website to find lots of helpful evidence based education, for you and your friends. Some web topics for school projects are:
Drink Water Instead! I How Our Kidneys Work I Youth Links
Kidney Kids can have amazing 'Wishes' come true!
Make-A-Wish Foundation of Australia grants cherished wishes to kids and young people with a life-threatening illness. Parents of Kidney Kids should apply - child's nephrologist must confirm if child's illness is life-threatening. Medically eligible children (under 4) are entitled to a “Wish Box” of toys. Contact Christina Kelly, Community Liaison Officer on 03 9426 0777, or email to firstname.lastname@example.org
Educational - but interesting as well as fun
- DaVita Highly recommended USA site - CKD, emotional health and wellbeing - sexuality, anger, depression, holiday blues, caregiver stress, sleep, positive thinking etc
Recipes for kidney kids and their families - heaps of info on many subjects
iKidney: Kids and Parents
- Hair, nails and Chronic Kidney Disease DaVita
Cook power food that your kidney will love - USA
Kidney Kids Cooking
Tips on just about everything to do with kids and life, health and hospital! UK
Kids First for Life
- Kidney Health Note especially What's the deal with Dialysis? and Chronic Kidney Diseases In Spanish and via audio files and Teens Health
- Kids Info on organ donation and transplants, plus colouring stencils and other fun USA
- Kidney Kids Cooking Have fun with cooking power food that your kidney will love - USA
- Kidney Kids Fun KKs cartoons to colour and other fun info NZ
Parents - Kids and Teen section USA
Kidney Kids Health
Info for Kidney Kids, Children's Hospital - Colorado USA
What kids need to know about Kidneys
More fun and learning stuff
CAMPS AND ACTIVITIES FOR KIDNEY KIDS
If you would like more information about our childrens and young adult programs, call Stephen Anderson -our Natiional Kidney Kids Camp Co-ordinator, on 1800 4 KIDNEY - 1800 4 543639 or email@example.com
Our National Kidney Kids Camps
Camps are held every 18 months with the goal to provide an environment where entertainment and structured adult-supervised activities are organised for Kidney Kids with access to medical treatment. Kidney Kids develop informal support networks and interact with peers with similar health issues.
NATIONAL KIDNEY KIDS CAMP
See video from most recent was held in Mt Eliza, Victoria - April 2012
There are several videos from this camp which tell the stories of awesome adventures and fun
at Kidney Kids Camp 2012. Also check out photos from Kidney Kids Camp (click link to download via Flickr)
Kidney Kids Capers
Australia wide day activity programs for school-aged children with kidney disease, their siblings of all ages, families and carers. Download Kidney Kids Capers photo board - with a big thank you to our volunteers!
UPDATED 23 MAY 2013