Icon - Recommended web links

Recommended web links

Helpful organisations and their resources

Carer support

Carer support resources can be found on our Carer support web page.

Chronic disease self-management guides

All about chronic kidney disease  
Kidney Learning System NKF (USA)  
My Kidneys My Health - handbook and mobile app, for newly diagnosed (Stages 1-3)

Crisis support services

Carer's Australia phone 1800 242 636 carer's advisory and counselling service
Kids Helpline 1800 55 1800 kids and youth (5 to 25) and parents
HealthDirect Australia helpline 1800 022 222 (24 hrs) 
Palliative Care Australia 1800 772 273 (9-5 Monday-Friday) emotional and counselling support
Translation Interpreting Services 131 450

General services

Better Health Channel 
Cancer Council Australia  
Diabetes Australia  
Griefline
HealthDirect Australia extensive kidney health information
Heart Foundation
Know Pathology   
Lab Tests Online  
MedicAlert® Foundation Australia  
Medicine Line  
National Continence Helpline 1800 330 066
National Health Service Directory  
Quitline 137 848
Stroke Foundation  

Indigenous resources

Victorian Aboriginal Community Controlled Health Organisation (VACCHO) - Victorian Aboriginal Palliative Care Project

Kidney cancer

Australian and New Zealand Urogenital & Prostate (ANZUP) Cancer Trials  
NPS MedicineWise  
Cancer Australia  
Cancer Council Australia  
10 for IO  
European Urological Association (EUA)  
European Society for Medical Oncology (ESMO) 
Kidney Cancer Canada read about becoming an advocate for kidney cancer
MacMillan Cancer Support  
National Comprehensive Cancer Network (NCCN)  
US National Cancer Institute (NIH)   

Kidney friendly recipes

Culinary Kidney Cooks USA  
Kidney friendly recipes  
Kidney Kids - Living, Diet and Nutrition
Kidney Patient Guide UK  
Potassium in food  
Potassium and Sodium list of foods in Australia  
Rediscovering Food and Flavours  
Spice It Up Canada  

Mental health support

Beyondblue mental health support service. Free and confidential.

SANE 1800 18 SANE (7263) Mental illness helpline open 9-5 weekdays for information and advice.

Lifeline 131 114 (24 hrs) crisis telephone counselling.

Nutrition resources

A-Z - Renal Diet and Nutrition  
Kidney Kids - renal nutrition and recipes USA
DaVita USA - Diet and Nutrition  
iKidneyDiet – smart phone app  
Kidney Community Kitchen to manage a renal diet 

 Organ donation and transplantation

DonateLife  
ANZDATA and ANZOD Registries  
Australian Organ Donor Register  
Australian Paired Kidney eXchange  
Australian Red Cross Blood Service  
Australian Tissue and Eye Banks in Australia  
Australian Bone Marrow Donor Registry  
Education for health professionals
Education for schools 
The Interactive Body: Organs and tissues for transplant  
Organ allocation protocols for kidneys in Australia  
Making a decision about Living Organ and Tissue Donation  
Transplant Australia  

Rare conditions

Amyloidosis Australia  
Amyloidosis Foundation  
Amyloidosis Support Groups  
Atypical Haemolytic Uraemic Syndrome (aHUS) Patient Support Group  
aHUS - Australia Facebook Group  
Cain Foundation for Branchio-Oto-Renal Syndrome 
Duplex kidneys and Horseshoe kidneys  
EdRen - Search for rare kidney conditions  
Fabry Support Group Australia  
Fibromuscular Dysplasia Association of Australasia  
Lupus, Scleroderma, related conditions  
Lupus Association of New South Wales    
Nephrotic Syndrome  
Potter's Syndrome  
Vasculitis Foundation  
Wegener's Granulomatosis  

Urinary conditions

Benign Prostatic Hyperplasia  
Continence Foundation of Australia  
Interstitial Cystitis Association  
International Painful Bladder Association  
Prostate Cancer Foundation of Australia  

Disclaimer: this collection of weblinks is recommended by Kidney Health Australia health team, and is provided for your convenience. Although the quality of these sites is reviewed, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Other sites may link to our site without our knowledge or permission.  Please direct website feedback, such as broken links to webmaster@kidney.org.au.

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