National Consumer Council

Our National Consumer Council was formed in 2003 to provide a formal pathway for people living with kidney disease to gain visibility about issues and opportunities they are experiencing. It’s also a mechanism for them to provide feedback to us on a wide range of topics.

The Council works at a national level to make a positive impact on the lives of people affected by kidney disease.

The purpose of the KHA National Consumer Council is to:

  • Act as a link to the wider patient community, identifying and prioritising any unaddressed issues or changes impacting kidney patients and their carers, either negative or positive.
  • Provide KHA and, where possible, the broader clinical community with an open and frank mechanism for feedback on policy, priorities, collateral and bodies of work supporting people living with kidney disease.
  • Advise and support KHA in regard to consumer involvement in kidney research.
  • Support KHA, where requested, in advocating for change to public health policy from the kidney patient perspective.
  • Support KHA, as available, at public events that raise the profile of kidney disease.
  • Work with KHA to educate about and raise the profile of kidney disease and the programs and services offered by KHA, within local communities and networks.

The National Consumer Council meets three times a year and is comprised of:

- 8-10 Australians affected by kidney disease drawn from a wide range of kidney disorders (including carers), socio-economic groups and with a national representation

- one or more members of Aboriginal and Torres Strait Islander communities.

- Members of the KHA Executive group as ex-officio members, including:

-our General Manager KHA Research (Chair)

-our Clinical Director

-our General Manager Community

- our General Manager Clinical Directorate


To achieve change, people must share their concerns and act together. By doing so, they can increase the power of their voice. We want to know the current issues affecting our kidney community, and also opportunities for change, and we encourage people to make contact with us by emailing consumer@kidney.org.au.

Terms of Reference

The Terms of Reference for the National Consumer Council can be downloaded here.

Consumer committeesPatient Charter
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