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Community support

Here are details of our Kidney Clubs from across Australia. We also promote various support groups, provide news of upcoming events, and give you information about our holiday programs for people on dialysis.

Kidney Club

Kidney Health Australia provides special support for children living with chronic kidney disease, including an annual national camp and other activity programs. These allow children and their families to interact with others who have similar health issues and develop peer support networks.

Thank you everyone for your support through the year of our Kidney Clubs.  An important focus for our effectiveness at Kidney Health Australia is achieving the best possible outcomes from the smartest investment of our resources and funds.  With the exciting appointment our new CEO Mikaela Stafrace, we have decided it’s timely for us to review all our activity and ensure we’re delivering appropriate program and services, which benefit all Australians living with kidney disease equally.

Given this review we’ve now started, we’re taking the opportunity to pause our last remaining Kidney Clubs for the year while we undertake this evaluation.  We will however, keep you updated on their recommencing in 2017, when we also look forward to having other exciting initiatives we can share with you.

The benefits of attending a Kidney Club in your city
Our Kidney Clubs are support groups specifically for people with any stage of kidney disease, who are on dialysis, have had or are waiting for a kidney transplant, or have one or more health conditions that can cause kidney function impairment. 

The major benefit of people with kidney disease and their families joining a Kidney Club is meeting other people who have experience with kidney disease, or any chronic disease. You can learn from others how to cope with and manage your daily needs, how to provide appropriate and effective care, and how to more easily live with your condition. You can also learn about available resources and how others solve problems you may be experiencing.

There are Kidney Clubs across metropolitan and regional Australia. Meetings are organised with the assistance of local hospitals, volunteers and community groups.

For more information about Kidney Clubs, email Matty Hempstalk at matty.hempstalk@kidney.org.au or phone him on 0404 177 748 or freecall 1800 454 363.

Also check our Kidney Club directory below for local contact details.


New South Wales

Armidale Kidney Club
Meetings held on 4th Wednesday of every month from 2pm to 5 pm at 115 Butler Avenue, Armidale. Parking out the back - “One of a kind community hub”. Afternoon tea provided. Meetings open to all patients affected by kidney disease and their families. No RSVP required, just drop in. Enquiries: phone Nicki on 0427 903 227 or email Club@kidney.org.au 

Blacktown Kidney Club
Open Blacktown Kidney Club flyer here. Enquiries: freecall 1800 454 363 or email Club@kidney.org.au

Euroballa Renal Support and Organ Donor Awareness 
Meet monthly at Bridge Plaza in Batemans Bay
Enquiries: phone Brad Rossiter 0458 534 470 or ersg.oda2536@hotmail.com

Hunter and Northern Kidney Association
Meet 2nd Tuesday, each month except January
7pm in Conference room, Wansey Dialysis Centre, 1a Dudley Road, Charlestown
Enquiries: Michael Jameson on 0410 587 977 or hanka.enquiries@gmail.com

Northern Territory

Alice Springs Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au
Local contact: Hayley Connelly, Flynn Drive Renal Unit, 08 8951 6785.
Kidney Club meeting poster.

Darwin Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au


Cairns Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au

Harvey Bay (Fraser Coast) Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au
Local contact: Lynne Abell or Debra Dow, Hervey Bay Renal Unit, 07 4325 6850.

Maroochydore (Sunshine Coast) Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au

South Australia

Adelaide Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au
Adelaide Coffee Club
Meets on the third Tuesday of each month from 10.00 am to noon at the Sheoak Cafe, 38 Sheoak Road, Belair. View their poster here. Enquiries: phone Joy on 08 8392 2809 or email dandjrob@yahoo.com.au


Hobart Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au

Tamar Renal Support Group
Meet regularly 4th Saturday in month 10.15am at Belle's Tea Room, Macquarie Street, George Town (50km nth of Launceston). Enquiries: Kelvin on 0428 617 697 or Club@kidney.org.au


Goulburn Valley Kidney Club
Enquiries: Carmel Chaston on 03 5795 2541 or email Club@kidney.org.au

Dialysis and Tansplant Association (D.A.T.A.)
Patient self-help group of people with kidney failure, their families, carers and friends. D.A.T.A. Victoria members on dialysis can access low cost holiday homes (two with dialysis options) for family holiday at Rosebud, Yarrawonga, Blackburn. Find out more at www.datavic.org 

Western Australia

North Perth Kidney Club
and South Perth Kidney Club
Enquiries: freecall 1800 454 363 or email Club@kidney.org.au

Albany Kidney Support Group
Small group of transplant recipients, dialysers, family and friends sharing information, experience and socialising. We also raise funds for the comfort of dialysis patients in our local unit. 

Enquiries: Shirley Harding on 08 9844 8404 or email her at shirleyh@westnet.com.au

Renal Support Group (Bunbury) South West WA
Meet face to face regularly. This group also engages via a private Facebook group. 
Enquiries: Lulu Paxton on 0417 182 811 or email renalsupportWA@groups.facebook.com

Australian Facebook 'kidney community' groups
Search Facebook to find online groups of kidney minded people. New groups are often private (apply to join - to protect privacy). After engaging with others in a support group who share a common experience, you learn you are not unique - others live with the same difficulties you experience.

aHUS Patient Support Group Australia
Rare genetic disease that affects a part of immune system, causing blood clots to form in small blood vessels throughout the body. People with aHUS have a constant risk of sudden, life-threatening complications from damage to vital organs such as the kidneys, heart and brain. aHUS can affect infants, children or adults - many develop kidney damage and need dialysis or kidney transplant.

Apply to join here. Find out more about this rare condition at ahusaustralia.org.au 

Kidney disease and diet ideas - APSGA
Shares ideas and recipes for CKD. Remember to check with your medical team before trying any recipes on this page. Members are not medical professionals but feel it's important to be active in learning about your health - own your kidney disease!

Visit apsga.org.au or phone Kerri Grey, President, aHUS Support Group Australia on 0402 052 411 or email her at info@apsga.org.au

Posterior Urethral Valve Group
Parents of children with PUV in Australia can discuss issues, concerns or share with others in a similar situation. Moderator is parent of a baby diagnosed with PUV at 10 days old - PUV is rare.

Apply to join here.

Tasmanian Kidney Community
Contact for this private Facebook group is Amanda Crawford - a dialyser from Launceston. Please introduce yourself when applying for membership. 

Apply to join here.

Holiday dialysis camp

The Henry Giblett Adult Holiday Dialysis Program allows people on haemodialysis to enjoy a holiday without missing out on life-saving treatment.

Currently operating in Busselton, Western Australia, it’s the only program of its kind in Australia.

Founded in the 1990s, the program is named in honour of Henry Giblett, a dialysis patient who had a haemodialysis machine installed at his holiday home, where he allowed other people on dialysis to stay for holidays.

Families who meet the program criteria can apply to attend a week's holiday, with dialysis provided at a temporary dialysis unit. Up to ten patients a day can receive dialysis, three times a week, for four hours at a time.

The dialysis unit is in a ‘non-hospital’ setting, which helps create a relaxing holiday atmosphere, and is walking distance to the beach. Program participants are supported by subsidised travel, accommodation, meals and activities.

All families stay at the Sebel Apartments and are provided with various tickets for activities throughout the week free of charge.

If you have any questions, please phone our Perth office on 08 6160 9500 or email wa@kidney.org.au.

While participation in the program is presently only for West Australian residents, we are looking to expand this program for the benefit of our kidney community around Australia. If you can help, please phone us on freecall 1800 454 363 or email info@kidney.org.au.

Funding to subsidise the Henry Giblett Adult Holiday Dialysis Program is kindly provided by Lottery West, who have a proud history of enhancing the quality of life and wellbeing of West Australians. You can read more about their community support programs here.

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