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Community support

Here are details of our Kidney Clubs from across Australia. We also promote various support groups, provide news of upcoming events, and give you information about our holiday programs for people on dialysis.

Kidney Club

An important focus for our effectiveness at Kidney Health Australia is achieving the best possible outcomes from the smartest investment of our resources and funds. With the exciting appointment our new CEO Mikaela Stafrace, we have been reviewing all of our activities to ensure we’re delivering appropriate program and services, which benefit all Australians living with kidney disease equally. 

Community Volunteer Managers across Australia will work with local consumers to bring this program together. As we move into 2017 we will advise our consumers of support programs with a different focus. 

The benefits of attending a Kidney Club
Our Kidney Clubs are support groups specifically for people with any stage of kidney disease, who are on dialysis, have had or are waiting for a kidney transplant, or have one or more health conditions that can cause kidney function impairment. 

The major benefit of people with kidney disease and their families joining a Kidney Club is meeting other people who have experience with kidney disease, or any chronic disease. You can learn from others how to cope with and manage your daily needs, how to provide appropriate and effective care, and how to more easily live with your condition. You can also learn about available resources and how others solve problems you may be experiencing.

Kidney Clubs are organised with the support of local hospitals, volunteers and community groups. For more information about local support programs and Kidney Clubs in your State, email khis@kidney.org.au or freecall 1800 454 363. Check our Kidney Club directory below for local events.


South Australia
Community Volunteer Manager SA - Teresa Taylor

Adelaide Kidney Club Meet-Up - Sunday 4 June 2017 from 10:30am to Noon
Venue: Kidney Health Australia - Adelaide Office, Level 1 - 136 Frome Street, Adelaide
(Building between Worsnop Avenue and Dawkins Place) see local map. Parking nearby.
Download our Adeliade Kidney Club poster here. Wear crazy hat theme - morning tea provided.
Guest speaker: A renal diet explained

Please RSVP by Thursday 24 May by contacting Kidney Health Australia by freecall 1800 454 363 or email the SA Community Volunteer Manager at teresa.taylor@kidney.org.au  
Future dates: Sunday 27 August
(no theme) and Sunday 26 November (Halloween theme)

Adelaide Coffee and Chat
Meets on 3rd Tuesday of each month from 10.30 am to 12.30pm at Sheoak Cafe, 38 Sheoak Road, Belair. View their poster here. Enquiries to Joy on 08 8392 2809 or email dandjrob@yahoo.com.au

New South Wales
Community Volunteer Manager NSW - Stephen Anderson

Armidale Kidney Club
Meetings held on the 3rd Monday of every month. from 2pm to 5 pm at 115 Butler Avenue, Armidale. Parking out the back. “One of a kind community hub”. Afternoon tea provided. Meetings open to all patients affected by kidney disease and their families. No RSVP required, just drop in. Enquiries: phone Nicki on 0427 903 227 or email stephen.anderson@kidney.org.au 

Blacktown Kidney Club
Enquiries: freecall 1800 454 363 or email stephen.anderson@kidney.org.au

Euroballa Renal Support and Organ Donor Awareness 
Meet monthly at Bridge Plaza in Batemans Bay
Enquiries: phone Brad Rossiter 0458 534 470 or ersg.oda2536@hotmail.com

Hunter and Northern Kidney Association
Meet 2nd Tuesday, each month except January at 7pm in Conference room, Wansey Dialysis Centre, 1a Dudley Road, Charlestown. Enquiries: phone Michael Jameson 0430 587 977 or hanka.enquiries@gmail.com

Northern Territory
Community Volunteer Manager NT - Sofia Kudlak

Alice Springs Kidney Clubs
Enquiries: freecall 1800 454 363 or email sofia.kudlak@kidney.org.au 
Alice Springs contact: Hayley Connelly, Flynn Drive Renal Unit on 08 8951 6785.

Darwin Kidney Club
Enquiries: freecall 1800 454 363 or email sofia.kudlak@kidney.org.au 

Community Volunteer Manager QLD - Sofia Kudlak

Cairns Kidney Club
Enquiries: freecall 1800 454 363 or email sofia.kudlak@kidney.org.au

            Gold Coast iSpeak Kidney Group
          Local contact:  Lorraine Bublitz (Bubbles) on 0434 769 694 and Rachael Brown on 0411 658 347

Harvey Bay (Fraser Coast) Kidney Club
Enquiries: freecall 1800 454 363 or email sofia.kudlak@kidney.org.au
Local contact: Lynne Abell or Debra Dow, Hervey Bay Renal Unit, 07 4325 6850.

Maroochydore (Sunshine Coast) Kidney Club
Enquiries: freecall 1800 454 363 or email sofia.kudlak@kidney.org.au

Community Volunteer Manager TAS - Mandy Moore

Hobart Kidney Club
Enquiries: freecall 1800 454 363 or email mandy.moore@kidney.org.au

Tamar Renal Support Group
Meet regularly 4th Saturday in month 10.15am at Belle's Tea Room, Macquarie Street, George Town (50km nth of Launceston). Enquiries: Kelvin on 0428 617 697 or email mandy.moore@kidney.org.au

Community Volunteer Manager VIC - Grant Monks

Goulburn Valley Kidney Club
Enquiries: Carmel Chaston on 03 5795 2541 or email grant.monks@kidney.org.au

Dialysis and Tansplant Association (D.A.T.A.)
Patient self-help group of people with kidney failure, their families, carers and friends. D.A.T.A. Victoria members on dialysis can access low cost holiday homes (two with dialysis options) for family holiday at Rosebud, Yarrawonga, Blackburn. Find out more at www.datavic.org 

Western Australia
Community Volunteer Manager WA - Justine Bell-Morris

North Perth Kidney Club and South Perth Kidney Club
Enquiries: freecall 1800 454 363 or email justine.bell-morris@kidney.org.au

Albany Kidney Support Group
Small group of transplant recipients, dialysers, family and friends sharing information, experience and socialising. We also raise funds for the comfort of dialysis patients in our local unit. Enquiries: Shirley Harding on 08 9844 8404 or email her at shirleyh@westnet.com.au

Renal Support Group (Bunbury) South West WA
Meet face to face regularly. This group also engages via a private Facebook group. Enquiries: Lulu Paxton on 0417 182 811 or email renalsupportWA@groups.facebook.com


Search Facebook to find online groups of kidney minded people, including our own Kidney Health Australia Facebook Like page. New groups are often private (apply to join to protect privacy). After engaging with others in a support group who share a common experience, you learn you are not unique - others live with the same difficulties you experience.

aHUS Patient Support Group Australia
Rare genetic disease that affects a part of immune system, causing blood clots to form in small blood vessels throughout the body. People with aHUS have a constant risk of sudden, life-threatening complications from damage to vital organs such as the kidneys, heart and brain. aHUS can affect infants, children or adults - many develop kidney damage and need dialysis or kidney transplant. Apply to join here. Find out more about this rare condition at ahusaustralia.org.au 

Kidney disease and diet ideas - APSGA
Shares ideas and recipes for CKD. Remember to check with your medical team before trying any recipes on this page. Members are not medical professionals but feel it's important to be active in learning about your health - own your kidney disease! Visit apsga.org.au or phone Kerri Grey, President, aHUS Support Group Australia on 0402 052 411 or email her at info@apsga.org.au

Posterior Urethral Valve Group
Parents of children with PUV in Australia can discuss issues, concerns or share with others in a similar situation. Moderator is parent of a baby diagnosed with PUV at 10 days old - PUV is rare. Apply to join here.

Tasmanian Kidney Community
Contact for this private Facebook group is Amanda Crawford - a dialyser from Launceston. Please introduce yourself when applying for membership. Apply to join here.

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