Icon - Organ donation links

Organ donation links

 Organ donor registries

Australian Bone Marrow Donor Registry or call 02 9234 2405
Australian Organ Donor Register or for more information call 1800 777 203
Australian Red Cross Blood Service or call 131 495
Australian Tissue and Eye Banks in Australia 

Australian transplant groups – general

Australian & New Zealand Intensive Care Society   
Medicare Australia 
Outcomes Australia
Transplant Australia  

Australian support and awareness – community groups

David Hookes Foundation 
DonateLife - Family Support Resources
DonateLife - Guide for Community Speakers
DonateLife - Organ Donor Awareness Week Sunday 31 July to Sunday 7 August 2016
DonateLife - Aboriginal and Torres Strait Islanders Resources
DonateLife Multicultural Resources
Transplant Australia  
World Transplant Games Federation  
Zaidee's Rainbow Foundation 

Australian transplant professional organisations

Australian & New Zealand Society of Nephrology 
Australian Transplant Co-ordinators Association 
Renal Society of Australasia 
Transplantation Society of Australia & New Zealand         
Transplant Nurses Association 

Live organ donation

Australian Paired Kidney Exchange Program 
Making a decision about living and organ & tissue donation (NHMRC)
Could I be a Living Donor (Transplant UK)
Live Kidney Donor - Travel Reimbursement Scheme WA

Organ donation – patient education online

DonateLife – Understanding the organ donation process  
Get the Facts USA
The Interactive Body: Organs and tissues for transplant  
DonateLife – Organ Donation Multicultural Resources  
NOVA education - heart transplant animation  
School Education Resources (Years 8 and 9) 
Kids Kare USA
TransplantKids UK  
Wiki overview – global organ donation systems, attitudes  

Education for health professionals – organ and tissue donation

DonateLife – Education on organ donation for health professionals 

Standards for treatment, organ donation and transplantation 

DonateLife – Policies and protocol
KDOQI Guidelines USA
KDIGO Guidelines 
KHA-CARI Guidelines
Organ allocation protocols for kidneys in Australia

Global links of interest 

Kidney Disease: Improving Global Outcomes (KDIGO)
National Institute of Health
 USA
Transweb USA

International transplant groups

Association of Organ Procurement Organization 
American Society for Artificial Organs 
British Transplant Society 
European Dialysis and Transplant Association (ERA-EDTA)
Declaration of Istanbul on Organ Trafficking & Transplant Tourism
Thinking of buying a kidney? STOP! What you need to know
WHO – Transplantation of human cells, tissues and organs  
Nephrology Dialysis & Transplantation Association – Education (NDT)
NTD Literature Review
Transplant Recipients International Organisation 
United Network for Organ Sharing USA

Data and statistics

Australia
ANZDATA and ANZOD Registries
Australian Institute of Health & Welfare - AIHW data and resources 
Kidney Health Australia - Fast Facts on CKD in Australia  
Kidney Health Australia - Education Patient Resources

Global
European Dialysis and Transplant Association Registry 
Global Observatory on Donation and Transplantation  - List of global registries
Scottish Renal Registry 
UK Transplant 
UK Renal Registry 
United States Renal Data System - List of dialysis organisations   

These links have been recommended by our health team. Although the quality of the sites has been reviewed, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. If a link is not connecting we appreciate your advice. Please email us at Kidney Health Information Service @kidney.org.au

 

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