Advice for kidney kids and youth

The discussion about schools is rapidly changing and varies between states.

In light of the recent social distancing updates, the TSANZ Paediatric Transplant Advisory Committee (PTAC) has produced information in relation to transplant patients returning to school.

We recommend you try to speak to your child’s renal specialist or renal unit staff for specific advice for your child. The advice you receive may be tailored to your child’s specific health situation. With the recommendations from your child’s healthcare team, talk to the school to make the appropriate arrangements.

In the meantime, take all precautions that are recommended at this time regarding COVID-19 including explaining social distancing to your child and asking them to practice this. If they are taking medications, make sure they keep taking them, and that you have two weeks of stock at home.

Radio National has produced a segment with tips on how to explain social distancing to your child.

Call ahead and check if you and your child really need to be there in person. Most clinics are moving to online/telephone clinics, unless it is necessary to see a patient. Do not let COVID-19 put you off, these appointments are very important.

Your child's usual doctor may not be available, but you will be provided the appropriate replacement.

Prescriptions are being posted out or faxed to pharmacies to ensure supply of medications, you can speak with your doctor to organise this.

Your child will still need to do blood tests as it is impossible to tell how our their kidneys are going otherwise. Blood collection centers remain open with many not asking patients with signs of coronavirus, if you are concerned, call ahead to find out what they are doing. In some cases, they may be able to arrange someone to come to your house.

Should you need to go to a pathology center, hospital or GP, it is important to maintain social distancing and good hygiene.

Are you worried about the COVID-19 pandemic, the changes happening in the world right now or are anxious about being in isolation?

This is perfectly normal, and it is natural you would you like to speak to someone about it.

Contact one of the services below for support or talk to your general practitioner.

• Lifeline Australia: 13 11 14
• Kids Helpline: 1800 551800
• Beyond Blue: 1300 224 636
• Australian Psychological Society
• Kidney Health Australia mental health support
• Kidney Health Australia Facebook Page