The Better Evidence And Translation for Calciphylaxis (BEAT-Calci) study aims to find the best treatments for a condition called calciphylaxis. Calciphylaxis is a rare disease, involving painful skin wounds, that occurs in some people with end-stage kidney disease. Currently available treatments have not been fully studied yet, so doctors caring for patients with calciphylaxis are unsure what the most effective treatments are and so do not know how best to care for patients. The trial uses a new design to tests multiple treatments at once and does not stop until we have an answer to the question. This makes discovering the best treatment quicker and more reliable. Patients that participate in BEAT-Calci will receive treatment over a period of 26 weeks, with initial treatments including drugs or new dialysis technology. The researchers will look at whether participants receiving treatment have an improved calciphylaxis outcome, which will be measured by an assessment of the skin wound. The BEAT-Calci Consumer and Community Advisory Committee (CCAC) has been developed to facilitate links with the kidney community and will work with the BEAT-Calci research team to make sure the study is designed appropriately, and that the study information and its results are communicated appropriately to consumers and the wider community. The CCAC is established but is looking for additional members.
Clinical Trial
Consumer involvment in committee
Other
Volunteers
Person with early stage kidney disease
Email: BEAT-Calci.study@sydney.edu.au
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