I am a researcher at CSIRO, where we will explore new research areas in chronic kidney disease (CKD) across various stages of its progression. As both a researcher and a Stage 4 CKD patient, I have a strong understanding of the disease and the challenges patients face. I am particularly interested in identifying key "pain points" that patients encounter along their journey to end-stage kidney disease (ESKD). We believe that patient insights should guide our research, ensuring we focus on the areas that matter most to people with CKD. To achieve this, I am looking to speak with at least 10 patients willing to openly discuss their experiences and the biggest challenges they face. These conversations will help shape future CSIRO research projects aimed at addressing these issues. Our team has developed a set of open-ended, unbiased questions to allow patients to steer the discussion based on what is most relevant to them. No ethics approvals are required, as this is not a formal study—no data will be published, and no personal details will be recorded. Would you like to be involved, and would you be willing to share your experiences? I will then arrange a phone call at a convenient time once I have your contact information (email). I appreciate any support you can provide. CSIRO is committed to taking a patient-centric approach to shaping our research direction.
Patient experience research
Consumer perspectives research
Once-off
Volunteers
in kind support
Person with early stage kidney disease
Email: [email protected]
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