Nari is on dialysis three times a week. “As a member of the reference group, I can help my people who have kidney problems or are starting dialysis.”
Nari, a Ngarrindjeri and Yorta Yorta woman, is on dialysis three times a week. She has lost her mother, brother and sister to kidney disease.
“When I started my kidney journey, I had the support of my mother, brother and sister, who were on dialysis,” Nari said.
Nari attended the Adelaide KHA-CARI Yarnings Kidneys session with her dad and aunt where she shared her experience with kidney disease to help inform the world first clinical guidelines for Aboriginal and Torres Strait Islander peoples. She found the consultations useful because she and her family could hear about the different ways people get started on dialysis, and how they are treated by nurses and doctors.
“As a member of the reference group, I can help my people who have kidney problems or are starting dialysis.”
When asked what she would say to others about the consultations, Nari said: “I would invite them to come to the next one, especially families of people who don’t know what dialysis patients go through.”