Our Community Research Hub aims to connect researchers with our kidney community so we can achieve better outcomes in research.
Kidney Health Australia strives to bring the kidney community's voice to research in a more coordinated way to translate community needs into research priorities.
Kidney Health Australia has created a Community Research Hub to reflect voices of a kidney community. We aim to publish research factsheets, establish kidney research register, provide training to people living with kidney disease and their carers, and create database that can match kidney community needs to the research.
If you want to participate in kidney research, please scroll down to the listings at the bottom of the page.
Kidney Research OpportunitiesIf you are interested in finding out more about what clinical trials are and how they are conducted click the button below
About clinical trialsThis study intends to document the dietary patterns of people doing PD. Participation invovles completion of a food frequency questionaire at baseline and 12 months later. People will be asked to consent to linking their dietary data to their information in ANZDATA. Consumers will be reimbursed $50 each time they complete the food questionaire (takes around 10-15 minutes). This can be completed online or via hard copy
Learn MoreWe are reaching out to people with lived experience of chronic kidney disease (CKD) and those on dialysis to undertake a survey to help validate a new measure of life participation. What is Life participation and why is it important? It is a term used to describe how well people with kidney disease can live their life and do activities that are important to them. We don’t have a way to measure this yet. Being able to measure your life participation means that we can better track how to improve your life both in clinical trials and at clinic reviews as well and change the focus from surviving to thriving with kidney disease. Who can participate? (A) are currently receiving dialysis (haemodialysis or peritoneal dialysis) (B) have chronic kidney disease but are not receiving dialysis and don’t have a transplant * you must also be over 18, speak English, and can complete online surveys. What will I need to do if I choose to help? You will be asked to complete an online questionnaire including some brief questions about yourself and questions about your mental health, ability to participate in meaningful activities, perceived kidney function, family support, and thinking and memory abilities (15 minutes to complete). You will be asked some questions (2 minutes to complete) in a weeks time, and then again in 12 months time (15 minutes to complete). What will happen to my information? Your personal information is encrypted in the University of Queensland. At the end of the survey, your information will be de-identified, then analysed and published internationally. You may choose to receive the results of the publication by selecting 'yes' to this response during the survey. Ethics is approved by the University of Sydney and the University of Queensland. How do I get involved? 1. Click this survey link for more information and to view the online consent form: https://redcap.sydney.edu.au/surveys/?s=P7YP73FKTDFFN7AR Please do not hesitate to reach out to us for more information should you require it. We greatly appreciate your help, to allow us to help you live your life better with kidney disease.
Learn MoreWork by our research team has found that people who have had a kidney transplant often struggle to start or get back to being active. We want to know more about what may help or hinder this. This project is exploring the motivation and inspiration for commencement of exercise after kidney transplantation and to understand the barriers and enablers to exercise. People who have had a kidney / kidney pancreas transplant, are aged 18+, can converse in English and consent to the audio recording of an interview with a member of the research team are eligible. We are keen to hear from people who have competed in any sport at any level and are keen to share their wisdom !
Learn MoreFirst-in-Human safety and tolerability study in adult participants with confirmed PKD1 mutation-associated ADPKD. The anticipated number of participants across 3 Part B (SAD - ADPKD) cohorts is approximately 18 participants. On Day 1, each participant will receive PYC-003 as a single IV infusion.
Learn MoreThis project aims to understand the relationship between emotional wellbeing, social isolation, loneliness, and chronic disease. This is a significant gap in current knowledge, due to a lack of representation of people with chronic disease in previous research. This study is the second in a series of three studies, with the goal of developing interventions to reduce loneliness and social isolation in people living with chronic diseases.
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