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Patient and family priorities for models of care in genetic kidney disease: Focus group with nominal group technique

Brief Description:

We invite patients and family members with a background of genetic kidney disease to participate in a focus group research study which aims to hear your perspectives on ways we can improve the model of care in genetic kidney disease. The findings from this study will help to inform strategies to address patient/family information, decision-making and support needs. Participation in this research is voluntary, and the information you give will be kept confidential, and will not affect the care you receive in any way. The focus group will be conducted online on a video-conferencing platform. Overall, this will take 1 hour 30 minutes, which includes a 10-minute break in the middle.

Type of research:

Patient experience research
Consumer perspectives research

Your time commitment:


Consumers re-imbursed?


Participation is voluntary, there is unfortunately, no compensation for participant time.

Who are researchers looking for?

All consumer groups, at any stage of kidney disease and including unaffected family members.

Contact for more info:

Email: [email protected]


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