Icon - Dialysis & support

Dialysis & support

Dialysis and support

A great deal of our advocacy is to support those on dialysis, and for carers of those living with end stage kidney disease – through advocating for increased home dialysis support, better dialysis provision, improved transport support and availability, parking, access to support and payments, increased respite services, and accommodation subsidies to cover time away from home for training and dialysis.

You can read about our work on trying improve the financial support for those undertaking home dialysis, our successful efforts to increase travel support below.

Further information about recent announcements on health policy can be found in Media.

Submissions

Kidney Health Australia submission to the Pharmaceutical Benefits Advisory Committee (PBAC) to request a change in the listing of Soliris (eculizumab)
June 2017
This submission outlines Kidney Health Australia’s submission to the PBAC regarding a change in the listing of eculizumab for people with aHUS and end stage kidney disease.

Read the submission here.

Kidney Health Australia Pre Budget Submissions - State Budgets 2016-2017
In addition to the Federal Budget Submission, we provided each State and Territory Government with pre-budget submissions tailored for each jurisdiction. These submissions cover the “Enable” (Home Away from Home Haemodialysis Program) the various patient travel schemes, and home rebate levels. 

Australian Capital Territory - download here
New South Wales
 - download here
Northern Territory - download here
Queensland - download here
South Australia - download here
Tasmania - download here
Victoria - download here
Western Australia - download here

The Impact of Increased Power Costs on Home Haemodialysis Australian Capital Territory.
October 2015
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within the Australian Capital Territory (ACT). 

You can read the submission here.

The Impact of Increased Power Costs on Home Haemodialysis Tasmania.
February 2015
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within Tasmania.

You can read the submission here.

The Impact of Increased Power Costs on Home Haemodialysis Queensland.
February 2015
Increases in the cost of electricity continue to contribute to the situation where home haemodialysis patients in Queensland face significant out-of-pocket costs. The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis in Queensland.

You can read the submission here.

The Impact of Increased Power Costs on Home Haemodialysis Northern Territory.
February 2015
The Northern Territory has the highest prevalence rate of dialysis patients in Australia. This is comprised of a significant number of Aboriginal and Torres Strait Islander renal patients, with a rate of 743 per million population (pmp).

The treatment option most utilised is haemodialysis, through stand-alone renal units in Darwin, Katherine, Tennant Creek, and Alice Springs or satellite centres in remote communities offering closer to home nurse-lead or self-dialysis models of care. The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within the Northern Territory (NT).

You can read the submission here.

The Impact of Increased Power Costs on Home Haemodialysis South Australia.
December 2014
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within South Australia.

You can read the submission here.

Kidney Health Australia Survey: Challenges in methods and availability of transport for dialysis patients.
October 2014
The purpose of this survey was to describe the transport options provided by dialysis units for consumers who are unable to provide their own dialysis transport, and to outline the costs to consumers and dialysis units for these services. This analysis is important for providing information to dialysis units and is critical to Kidney Health Australia’s advocacy work regarding service gaps and/or areas of best performance in dialysis patient transport.

You can read the submission here.

The impact of increased power costs on Home Haemodialysis (re-released 2014).
September 2014
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis.

You can read the submission here.

Kidney Health Australia Submission to Senate Inquiry on out-of-pocket medical costs in Australian healthcare.
June 2014
This document outlines Kidney Health Australia’s submission to the Federal Government’s Senate Inquiry on out-of-pocket medical costs. Some of these costs for kidney consumers might be related to transport costs - to and from dialysis; home dialysis costs; and costs associated with being a live donor.

You can read the submission here.

Inquiry into the Patient Assisted Travel Scheme (PATS) in Western Australia. 
May 2014
Kidney Health Australia requests this submission be accepted as part of the 'Inquiry into the Patient Assisted Travel Scheme (PATS)' undertaken by the Western Australian Parliament's Standing Committee on Public Administration.

You can read the submission here.

Kidney Health Australia submission to the Queensland Government’s review of patient travel.
December 2013
This submission outlines Kidney Health Australia’s suggestions on improving the Queensland patient travel reimbursement scheme.

You can read the submission here.

Kidney Health Australia submissions into South Australian Government review of patient travel.
October 2013
These submissions outline Kidney Health Australia’s suggestions on improving the South Australian patient travel reimbursement scheme.

  • The first submission (October 2013) outlines the high level issues on this topic - read initial KHA review here.
  • The second submission responds to the more detailed terms of reference, following their release - read the KHA response to SA Government on the PATS scheme here

Kidney Health Australia submission into the Northern Territory review of patient travel.
June 2013
This submission outlines Kidney Health Australia’s suggestions on improving the Northern Territory patient travel reimbursement scheme.

You can read the submission here.

Submission on ACT Government’s Strategy for Improving Care and Support for those Living with Chronic Conditions.
November  2012
This submission presents our views and recommendations on the ACT Health Directorate’s ‘Strategy for Improving Care and Support for those Living with Chronic Conditions 2012–2017’.

The submission outlines the state of kidney disease in Australia, provides specific feedback on the previous ‘2008–2011 - ACT Chronic Disease Strategy’ and comments on the six key goals and priorities outlined in the plan.

You can read the submission here.

Submission to the Independent Hospital Pricing Authority (IHPA) Consultation Paper for the Pricing Framework for Australian Public Hospital Services 2013–14. 
October 2012
This submission outlines a number of points regarding the delivery of dialysis services and the current varying rates of uptake of the different modalities and settings in which it is undertaken, particularly regarding home dialysis.

We put forward the view that there should be a more holistic accounting of home dialysis, including the costs faced by people in undertaking dialysis at home, when looking to determine the ‘efficient price’ for the delivery of these services.

You can read the submission here.

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