Carers may need help, and to be cared for too. Support for carers may be financial, personal, social, help at home, or opportunities for respite.

Carer support

Carer Gateway, Department of Social Services- provides information about the services and support available for people who care for someone with a disability, chronic illness, dementia, mental illness or who are frail aged. Visit www.carergateway.gov.au or phone 1800 422 737.

Palliative Care Australia offer information and resources to support people with a life limiting illness and their families, ensuring they are supported to live, die and grieve well. Read Palliative Care Australia information for families and carers here. They have also produced a book for family carers of people diagnosed with a life threatening illness who require palliative care. Open 'Supporting a Person Who Needs Palliative Care - A Guide for Family and Friends' here.

Victorian Aboriginal Palliative Care Project aims for Aboriginal people to have access to palliative care services and for palliative care services to provide culturally safe services to Aboriginal people. 

Financial support – all dialysis

There are a number of options for financial support for carers. Many of the payments are administered through Centrelink. There is a booklet that summarises the financial support available, which you read more about here.

Support from family members or others

It’s important to remember that if you’ve chosen to take an extensive role in the care of your loved one for home dialysis, you can burn out.

You may be the dialysis expert and have to perform this particular function; however, help with housework, shopping and picking the kids up from school may be things that others can do for you.

Always accept any assistance that is offered. You need to stay healthy and happy to support your loved ones.

Gather My Crew – free online rostering tool 

Gather My Crew is a way for carers to get help when going through tough times. Rather than using the usual ring-arounds, text messages and spreadsheets, to coordinate support, Gather My Crew is an online rostering tool that allows you to gather or ask for, the practical help you need from your ‘Crew Members’ (friends, family, neighbours and colleagues). It lets your ‘Crew’ to decide when and how they will help. Gather My Crew sends regular reminders and updates to keep everyone in the loop. 

Gather My Crew is free and easy to use. Visit www.gathermycrew.org.

Gather My Crew

Respite

For people on home haemodialysis, opportunities for respite will usually require access to a dialysis machine at either a local satellite dialysis unit or a home training unit that can offer the service. Discuss this option with your dialysis healthcare team team.

For people on peritoneal dialysis, opportunities for respite will usually involve placement at a nursing home, which involves a daily payment. There are some options for this in most states. Your dialysis healthcare team or a social worker can advise about the options in your state.

You can also see more information on the ‘My Aged Care’ website here.

Private dialysis nurses

Another support option, if affordable, is to engage a private dialysis nurse, either through the Department of Veterans Affairs or independently.

You can visit the Department of Veterans Affairs website here.

Dialysis Australia - provides dialysis nurses for in-home care. You can phone them on freecall 1800 994 224 or visit their website here.

Talk to your home dialysis healthcare team or social worker about other options in your state. 

Further care support resources 

Carers can find helpful web links and resources of other organisations on our Recommended web links page.

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