Your Kidney Forum
'Your Kidney Forum' is for people who are living with a kidney-related illness, or people supporting someone living with kidney-related illness, as well as health professionals and educators. Everyone is invited to join the discussion. Visit 'Your Kidney Forum' here.
aHUS Patient Support Group Australia
A rare genetic disease that affects a part of the immune system, causing blood clots to form in small blood vessels throughout the body. People with aHUS have a constant risk of sudden, life-threatening complications from damage to vital organs such as the kidneys, heart and brain. aHUS can affect infants, children or adults - many develop kidney damage and need dialysis or a kidney transplant. Apply to join here. Find out more about this rare condition at ahusaustralia.org.au
Posterior Urethral Valve Group
Parents of children with PUV in Australia can discuss issues, concerns or share with others in a similar situation. Moderator is the parent of a baby diagnosed with PUV at 10 days old - PUV is rare. Learn more by contacting firstname.lastname@example.org.
We have a number of Facebook groups for our kidney community to connect within. All group members are individually vetted to ensure the safety of group members.