Project Overview: Organ Transplant Recipient Experience & Resilience Initiative
Resilience Rising Advocacy is conducting a comprehensive initiative examining the emotional, practical, and social experiences of organ transplantation to shape the future of community peer support and resilience toolkits.

Project Background
Navigating organ failure, transplant evaluations, and long-term recovery frequently presents profound emotional, physical, and social hurdles. Too often, health frameworks react strictly to acute clinical crises while leaving the lived daily realities of psychological adjustment, health anxiety, and social isolation unaddressed. This project aims to bridge the gap between clinical care and community-led peer support.

Project Objectives

Assess Lived Realities: Understand the unique challenges faced during the pre-transplant waitlist period, the acute procedure phase, and long-term post-transplant recovery.

Identify Support Gaps: Evaluate the accessibility and effectiveness of existing emotional, practical, and mental health resources.

Shape Peer Programs: Direct consumer insights toward the creation of structured peer mentoring, resilience-building toolkits, and advocacy frameworks.

Consumer Recruitment Criteria

Individuals currently waiting for an organ transplant (waitlist).

Organ transplant recipients across all organ types (including kidney, liver, heart, lung, pancreas, and multi-organ recipients).

Individuals of any age group, from paediatric/youth demographics (via guardian context where applicable) to older adults navigating long-term survivorship.

What Consumers Are Required to Do

Complete the Experience Questionnaire: Share personal experiences, emotional wellbeing ratings, and support utilization across the pre-transplant, peri-operative, and post-recovery stages.

Contribute Insights: Provide recommendations on what hospitals, transplant units, and advocacy groups can do better to support mental health and long-term adjustment.

Optional Future Involvement: Consumers may optionally elect to participate in confidential follow-up interviews, review future support resources, or join forthcoming peer-support programs.

Time Commitment & Participation Requirements

Estimated Time Commitment: Approximately 15 to 20 minutes to complete the initial questionnaire.

Voluntary Participation: Participation is entirely voluntary, and contributors may skip any question or withdraw at any stage without affecting their medical care.

Data Privacy & Consent: All responses can be kept anonymous for aggregate reporting and case study insights, with explicit consent gathered prior to inclusion.

• Person with early stage kidney disease
• Person on dialysis / transplant