If someone you love has kidney disease, you may find yourself in a carer role. This may include helping them in daily activities, managing medication, as well as providing emotional, social or financial support. The work carers do to support those living with kidney disease is vital. However, this role can be challenging at times. It’s important for carers to also feel supported throughout the patient’s journey with kidney disease.
It’s important to recognise that as a carer, you too may feel deeply affected by the diagnosis of someone close to you. In fact, the Carer’s Bill of Rights outlines the rights you have to make choices and enjoy the things you most enjoy in your personal life. This 14-point list of rights can empower you to have a voice and feel more supported during difficult situations as a carer.
There may come times when you need to reach out for extra help. Read on to find out more about the resources and support available for those caring for someone with kidney disease.
As a carer, you may be eligible to receive government payments through Centrelink. These payments can include:
- Carer Payment – primary income support for carers
- Carer Allowance – financial support to assist with care costs
- Carer Supplement – a lump sum paid to people receiving the Carer Allowance payment and/or the Carer Payment.
Visit the Department of Human Services website for more information about available government payments and eligibility tests.
You can also learn more about financial support for carers via Carers Australia.
If someone you care for has kidney disease, you’ll need to regularly work with doctors, nurses and other health care workers. You may be responsible for getting your loved one to their appointments or ensuring they receive the treatments they need. You may also be involved in decision-making about their health care.
Learn more about working with health care providers on the Carer Gateway web page.
If you take care of someone who is nearing the end of their life, it’s important to plan ahead. This can include making a will, organising palliative care, and tending to legal duties after your loved one passes way.
While this can be an emotional process, but know that you don’t have to go it alone. You can get support to help you through this journey.
Learn more about planning for the end of life on the Carer Gateway web page.
As a carer, you may need to help the person you care for make decisions about their health with their healthcare team. By making decisions collaboratively, you can reach the best outcomes for everyone involved. Healthcare professionals can bring their expertise in kidney disease and treatments to the decision-making process. As a carer, you can support your loved one to share their concerns and ask questions.
Before making any decisions, ask your healthcare provider:
- What are your options?
- What are the benefits and disadvantages of each option?
- How could each treatment affect you?
You can find out more about the questions to ask via Ask Share Know.
Carers can also learn more about shared decision-making on the Australian Commission on Safety and Quality in Health Care’s (ACSQHC) web page.
Caring for someone with kidney disease
To provide the best care, you need to look after yourself as well. That sometimes means reaching out for help – whether it’s financial, personal support, or respite care for your loved one.
